Category Archives: Support group

World Down syndrome Day – 2016 edition

It’s been a rough couple of years. From unemployment to starting a business, to spending sixteen excruciating days at the hospital while our son Jonathan battled a mystery illness to watching our daughter Charlotte struggle with a chronic disease, life … Continue reading

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What a day!

There are some days that will be forever etched in my memory; days which I can call up from beginning to end that will always bring a huge smile to my face.  My wedding day was one of these.  So … Continue reading

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The Buddy Walk Blues – NOT!

It was the kind of day that makes you forget everything about what you’re doing and why you’re doing it – and then makes you kick yourself for being such a jerk. From the moment it was clear the kids were going to miss the school bus, I was in full-on whirling dervish freak out mode, realizing the items on the to do list were too long and that the day – and my temper – were way too short. Continue reading

Posted in Deedah DVD, Jonathan, Support group | Tagged , , | 10 Comments

Why I walk

Tomorrow is Savannah’s Buddy Walk.  We have frequently bragged about our local group, the Lowcountry Down Syndrome Society, and the terrific job they do with awareness in the Savannah area.  I am amazed that after only 5 years, they attract … Continue reading

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Wordless Wednesday…and Buddy Walk plug

The Savannah Buddy Walk is this Saturday.  Sign up for the J-Walkers here (up to 8:00 PM on Thursday), or at Forsyth Park starting at 8AM on Saturday morning.  J-Walkers meet at 9:50AM just left of the stage.  Look for … Continue reading

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Therapy

One of our readers asked me to blog about what therapies Jonathan is receiving and has received in the past.  I am happy to share this, but must admit that when it comes to therapy, I’m a bit lazy.  That … Continue reading

Posted in Jonathan, neighbors, Support group | Tagged , , , | 5 Comments

A very productive meeting

I have never been more proud of my local Down syndrome support group than last night.  Lowcountry Down Syndrome Society (www.ldssga.org) has done some amazing things in its only five years in existence.  The group has raised a lot of … Continue reading

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Posted in Jonathan, Support group | Tagged , | 5 Comments