Category Archives: Deedah DVD

World Down Syndrome Day…in Utah!

Today is World Down Syndrome Day, the day set aside each year to celebrate all of those who are blessed with “something extra,” including my son Jonathan.  As many of you may know, our family’s world is a different one … Continue reading

Posted in Deedah, Deedah DVD, Jonathan | 3 Comments

Update from Salt Lake City

I’ll say it again, we are the world’s worst bloggers. Almost a year ago–Valentine’s day–to be exact, I started work in Salt Lake City.  I moved here last March and Brooke and kids followed in June.  We ended up buying … Continue reading

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What’s going on?

Wow, we have turned into lame bloggers.  You are probably thinking we just dropped off the face of the earth, and in some ways we have.  We have been wicked busy, but it’s all good. We are very excited that … Continue reading

Posted in Deedah, Deedah DVD, Jonathan | 2 Comments

Why we made Deedah, and how we hope people will use it

The simple answer is we wanted to demystify what is like to have a child with Down syndrome; to show that Jonathan really is a blessing.  We wanted to encourage parents, and to educate children.  Sometimes someone says it better … Continue reading

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winners

Hi all.  We are working on the epic Buddy Walk post and it occurred to me we hadn’t chosen the winner from the post last week.  So with no further ado… Congratulations to Elissa Lindsey, and to reward persistence and … Continue reading

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The Buddy Walk Blues – NOT!

It was the kind of day that makes you forget everything about what you’re doing and why you’re doing it – and then makes you kick yourself for being such a jerk. From the moment it was clear the kids were going to miss the school bus, I was in full-on whirling dervish freak out mode, realizing the items on the to do list were too long and that the day – and my temper – were way too short. Continue reading

Posted in Deedah DVD, Jonathan, Support group | Tagged , , | 10 Comments

now and the future

“Jonathan, what do you want to be when you grow up?” “A policeman.  with a dog.” “Oh cool.  Like a German Shepard?” “No. with a puppy.” *** Every couple weeks, I ask the kids what they want to be when … Continue reading

Posted in Deedah, Deedah DVD, Jonathan | Tagged , , , , , | 2 Comments

And the winner is…

Karen Johnson says: Hi, I’m new to your blog having read a comment you left on Kelle’s blog in regards to boneless puddles. I’m a new mom to DS but my baby is actually going to 16 in December, I … Continue reading

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Grandma’s post

I still receive handwritten notes from my mother for my birthday and random occasions.  My mom always writes beautifully and reminds me of some long past event.  I asked her to write a post for Deedah and Me knowing I … Continue reading

Posted in Deedah, Deedah DVD, Jonathan | Tagged , , , | 1 Comment

On profanity, and pride

Phil and several of you challenged me to blog – so here goes! I am so moved by the comments we’ve received about the film, my children and our family – I can’t even begin to express it.  I, too, … Continue reading

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Posted in Deedah DVD, Jonathan | 12 Comments