Author Archives: Phil

Why we made Deedah, and how we hope people will use it

The simple answer is we wanted to demystify what is like to have a child with Down syndrome; to show that Jonathan really is a blessing.  We wanted to encourage parents, and to educate children.  Sometimes someone says it better … Continue reading

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Rated PG

We try really hard not to offend anyone here at Deedah and me.  The blog confronts difficult situations and we discuss sharp feelings, but we avoid the controversy and keep things mostly rated G in this rated R world we … Continue reading

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What might you become, Jonathan?

What Jonathan’s adult life will be like is in the top 5 things I think about in the quiet moments. Let’s face it, he is unlikely to be a surgeon, or Chief Financial Officer, but I suspect he will exceed … Continue reading

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Progress report

I don’t think about Jonathan’s development on a day to day basis.  I don’t dwell on the likelihood that he will need more than 18 years to get through high school.  Rather I take comfort in the fact that if … Continue reading

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We’re more alike than different

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You want to be alright, you gotta walk tall

Our thank you card to all the people who joined the J-Walkers and to the Lowcountry Down Syndrome Society members and volunteers who make the Savannah Buddy Walk the event of the year. Enjoy… Bookmark on DeliciousDigg this postRecommend on … Continue reading

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winners

Hi all.  We are working on the epic Buddy Walk post and it occurred to me we hadn’t chosen the winner from the post last week.  So with no further ado… Congratulations to Elissa Lindsey, and to reward persistence and … Continue reading

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Why I walk

Tomorrow is Savannah’s Buddy Walk.  We have frequently bragged about our local group, the Lowcountry Down Syndrome Society, and the terrific job they do with awareness in the Savannah area.  I am amazed that after only 5 years, they attract … Continue reading

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Wordless Wednesday…and Buddy Walk plug

The Savannah Buddy Walk is this Saturday.  Sign up for the J-Walkers here (up to 8:00 PM on Thursday), or at Forsyth Park starting at 8AM on Saturday morning.  J-Walkers meet at 9:50AM just left of the stage.  Look for … Continue reading

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now and the future

“Jonathan, what do you want to be when you grow up?” “A policeman.  with a dog.” “Oh cool.  Like a German Shepard?” “No. with a puppy.” *** Every couple weeks, I ask the kids what they want to be when … Continue reading

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