Author Archives: admin

World Down syndrome Day – 2016 edition

It’s been a rough couple of years. From unemployment to starting a business, to spending sixteen excruciating days at the hospital while our son Jonathan battled a mystery illness to watching our daughter Charlotte struggle with a chronic disease, life … Continue reading

Posted in Jonathan, Support group | 1 Comment

Adventures in Academia, or What I Learned in Preschool

This post started out as an answer to a question to our Therapies post, but it soon became clear that it deserved its own post.  The comment was: Thanks so much for this information! I think I was the one … Continue reading

Posted in Jonathan | Tagged , , , , | 4 Comments

Therapy

One of our readers asked me to blog about what therapies Jonathan is receiving and has received in the past.  I am happy to share this, but must admit that when it comes to therapy, I’m a bit lazy.  That … Continue reading

Posted in Jonathan, neighbors, Support group | Tagged , , , | 5 Comments

Fish and Pizza

Last weekend, we headed up to Atlanta.  On Saturday, Brooke went to the Downsed Conference, while I visited with my brother and his family.  So here goes, a dang near perfect day. First off, the kids slept in so I … Continue reading

Posted in Jonathan | Tagged | 2 Comments

Then Jonathan says…

We went to the neighborhood pool last Monday.  One of the swim team organizers saw Jonathan and Charlotte and gave them their trophies.  Frankly, I’m shocked they recognized the kids.  We went to several practices early in the summer then, …uh…we didn’t. … Continue reading

Posted in Deedah, Jonathan | Tagged | 3 Comments

A real hero

I found this message over at My Life with Gabriel.  I couldn’t say it any better so I’ll quote verbatum: I am certain that you have most likely heard of Andrea Roberts and her passionate mission and work through Reece’s … Continue reading

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Finding out

Warning, this is a long post.  Grab the big mug of coffee. Brooke’s post on finding out about Jonathan’s diagnosis of Down syndrome brought back memories of that surreal period; when we found out we were not on the road … Continue reading

Posted in Jonathan | Tagged , | 5 Comments

Happy Birthday to Me! …and finding out about Jonathan

Well, Phil let the cat out of the bag – yes I am celebrating a BIG birthday this weekend: THE BIG 5-0!  Today is my actual birthday, but the festivities kicked off on Friday night with a surprise birthday party … Continue reading

Posted in Jonathan | Tagged , , , | 6 Comments

We’re still here, just mostly there

We haven’t dropped the blogging, life simply took over. It was a busy week.  The kids had their first week of school.  Both kids have wonderful teachers.  Most of Charlotte’s buds are in her class.  Jonathan has moved up to … Continue reading

Posted in neighbors, Uncategorized | Tagged | 1 Comment

On style

Several months ago, Jonathan became aware of image and started lobbying for a new haircut.  I’m not a real style conscious person, but I have to admit I was glad there was another in the family suggesting a different haircut. … Continue reading

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Posted in Jonathan, Uncategorized | Tagged | 9 Comments