This site was created by Deedah’s family to help spread awareness and information for those seeking positive experiences with Down syndrome. We have a son, Jonathan, who has Down syndrome. Mom and sister Charlotte made a film about Charlotte and Jonathan’s relationship, specifically what it is like to have brother with Down syndrome. The film is called “Deedah” which is the nickname Jonathan gave to Charlotte.
Our hope is that this film will be distributed widely to schools, hospitals, doctor’s offices, therapists and families to help explain what living with Down syndrome is really like. For us, it has been a blessing beyond description. Jonathan has taught us compassion, understanding, forgiveness, and his surprising wit has never failed to make us laugh.
To know Jonathan is to love him. We hope that you spend some time to get to know him as well.